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Cushings Journey: Update...Highly Requested

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This has been a highly requested video. In this video I will be updating you all on my Cushing's Journey. SHOP my faves in my on-line boutique! https://www.topfloor.com/hayley7363.. Check out my favorite foundation brush the F80 here! http://www.sigmabeauty.com/?Click=296539 YOUTUBE: http://www.youtube.com/user/hayley7363 Visit my home decor and organization channel: http://www.youtube.com/user/Hayleyswifestyle BUSINESS INQUIRIES: Hayley7363@gmail.com FACEBOOK PAGE: https://www.facebook.com/pages/Hayley... Instagram: Hayley7363 TWITTER: http://twitter.com/Hayley7363 EMAIL REQUESTS OR SUGGESTIONS TO::Hayley7363subs@gmail.com HAUTELOOK: (Shop the best sales around!) http://www.hautelook.com/short/3Edo0 l
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Текстовые комментарии (35)
natureasintended (9 месяцев назад)
Thank you for your encouraging video. Btw, all the longest living cultures thrived and survived on carbs, low fat. See the info here. <3 https://www.facebook.com/PlantBasedEvidencePaleoDiet/
Debby Airhart (1 год назад)
Nine years since I had Cushings Disease. Had a golf ball size brain tumor removed. Nothing like this was around back then. So glad people are sharing their experiences.
Debby Airhart (1 год назад)
JustMe&B They were able to get all of it. Unfortunately I lost all of my hormones and developed Panhypopituitarism. I hope you don't get it, but if you do there is a really good support group on Facebook.
JustMe&B (1 год назад)
Update on your condition. Your tumor is large so were they able to get all of it? I have a 1 cm. tumor scheduled to have removed on the 21st.
Charasmarie Plans (2 года назад)
my daughter is having her tumor remove on april 6th she lost awhole bunch of hair and she has those stripes on her arms will they go away how long were you in the hospital my daughter tumor is a size of a walnut well they remove all of it!!!
Rob Lewis (2 года назад)
Hi, I'm wondering do you get headaches or food related headaches? Or have pre-existing allergies gotten worse since having Cushing's? And have you written about your condition in a blog? Thanks for any answers.
natureasintended (9 месяцев назад)
Have you had a Cushings diagnosis? Might you have h-pylori infection causing the allergies?
Bob Gifford (3 года назад)
Dr. U removed my AVM he is my hero for sure  http://fandalism.com/bobgifford/dmZ5
Niyah Mansfield (3 года назад)
I have had brain surgery for the same thing but please don't wait to long because that tumor can effect your vision
Emily Salonich (3 года назад)
I have cushings from all the steroids they've put me on for my allergic reactions. I feel the pain of the large stretch marks and the weight gain. I've gained 50 lbs keep your head up we can't help it!
Carrie Feder (3 года назад)
Thank you for your experiences!  I have been diagnosed with a pituitary tumor and now I'm going thru more testing to see if I have Cushing's.
haili gutoski (3 года назад)
I have been going to the doctor for almost two years now and in the last few months Cushing's came up as a possible answer to all my questions. I became knowledgeable about the disease and I believe I have Cushing's. Does Cushing's take a long time to diagnose? I don't like being in the dark when it comes to my health.
Kali Spiers (3 года назад)
Really happy I came across your channel! I will be getting my results on if I have cortisol overproduction next week. You have a positive attitude which I can relate too! I am trying to not let the ups and downs get to me and push through. Thank you for sharing! God Bless! 
Indica Barnett (4 года назад)
What? What do you mean you cant lose weight? The surgery dosent eliminate truncal obesity? What happens? You just stay big? Help!
Brie Angeline (11 месяцев назад)
Indica Barnett I’ve seen people with it who the fat melts off once they have surgery so no the weight doesn’t stay for everyone
Marta K. (4 года назад)
this video is extremely helpful, thanks! I have a question, I've got some symptoms of Cushing's, but only a few. I don't have any stretch marks, high blood pressure, acne. Does it mean that I don't have this syndrome or it is possible that some of the symptoms don't appear? Can you tell me what lab tests should I do? I had a test with dexamethasone, or something like that. My cortisol level was very low, so that must mean that dexamethasone suppressed it. Should I still be afraid though the result of my test was negative? Or maybe everything is ok?
natureasintended (9 месяцев назад)
It doesn't sound like Cushings. How are you now? x
Frankey Castillo (4 года назад)
omg so weird, I had brain surgery for this exactly a day after you uploaded this. i had cushings for a while also and many other problems caused by my pituitary tumor (including really deep stretch marks on back and thighs) :( but now I'm better and I use 'Cicatricure' on my stretch marks and they're almost gone, i recommend trying it :)
Michelle Hobbs (3 года назад)
thank you so much for your response!  Have you noticed that you are feeling better yet?  If so what changes have you noticed?  How did you figure out that you had this if you don't mind my asking?
Frankey Castillo (3 года назад)
I went to UCSD Hospital in San Diego and I forgot what the surgery is called but it's when they go through your mouth and nose instead of having to open your head. My surgeon's name is Dr. Hoi-Sang U. 
Michelle Hobbs (3 года назад)
which surgery did you have and where did you have your surgery?  I'm trying to determine where to go for my surgery and wondered what your experience was?
Myla Held (4 года назад)
Love, love, love your positive attitude! I too have Cushing's disease, with a small tumor on my pituitary gland. I gained 130 lbs in less than 3 years despite eating fairly healthy and being active. I also have a lot of the same symptoms as you, but the best thing is to stay positive and knowing that doctors are trying to do their best at providing the care that we all need! I'm waiting for the sinus sampling since they think that will provide the best results in removing the tumor during surgery and ensuring that I won't have to go in for a second surgery. The disease may be a horrible and rare thing, but if we all just stay positive and look on the bright side knowing that there are ways to deal and manage it then we can all get through it! :) 
Julie Pye (4 года назад)
Hi Seen your link on my cushings link I have on Facebook I know what your going through too, I was finally diagnosed with Cushing disease too last January and since then my life has been a world wind of in and out of hospital visits. They said that I'd had it for over ten years and hasn't seen a case like me before, I had a very enlarged tumour on my piturity gland that had conclaved in its self which was wrapped around my optic nearves and arteries, they could not remove all as it was too dangerous that was last September then in the November I had my adrenal glands removed which were four and five time the normal size, since then I have lost three stones my appetite has also changed. I haven't even tried to loose it too, hoping to hit the gym again to help support my muscles. Like you I have too many symptom to say that since I was in my teens kept going back and forth to the doctors for. I've just had my mask made for my radiotherapy and at the end of the week I start my five week radiotherapy and start leading what you call a normal life again. I'm going to have to have regular MRI / ct scans and scrape out in the future and closely monitored The ops are not that bad, I was surprised in how quick I recovered, put I had a lot more aches and pain which I'm not full recovered from. Like you I sad I have had it for years and put up with it then so it's not stopping me now, I'm going to do things I wanted to do in my twenties which I got sidetracked and but on hold till by my angels from above knew when the time was right, for me to fulfil my dreams xx I have my good and bad days but I stay strong for my family and friends and for my dreams as I know I'll never be able to work in day nurseries agains. Xx
natureasintended (9 месяцев назад)
How are you now?
Adriana Perez (4 года назад)
hi! i have cushing desease too i had my surgery on june last year i understand what you are going thruoght. It is not easy... i hope you get better soon, by the way it is nice from your husband to be with you. It is very important to have someone with you. Let me tell you something about my symptoms, as you mentioned I also had does moments where got angry without a reason then I will cry like crazy but as you said it was because of the hormonal changes other thing that happened to me is that I had seizures i don`t know if that is happening to you on top of that I had hallucinations panic attacks and many other symptoms. After I had my surgery things are changing gradually, I feel better no more panic attacks I haven`t have any seizure so far but I still take my medicine for the seizures. One thing I can tell you is follow your doctors` directions and don`t miss any appointment. once againg you look great!!!!
Michelle Hobbs (3 года назад)
Adriana, which surgery did you have and where did you have your procedure done?  I have an 11x11x12 pituitary tumor with cushings and I'm trying to decide where to have this procedure done.  How was your recovery and how long after surgery?
Natalie Corona (5 лет назад)
wow you are so strong and positive! im so sorry you are faced with this disease but happy that its not something worse! This was such a great video, I didnt know much about it until this. Thank you for sharing!
ShAwNiEsPReTTyNiNk (5 лет назад)
Aww love ya hun..you are handling this so well...I think I would be a mess!! Keeping a positive attitude is the only way to go..Thank you for sharing your life and your story..you are a true inspiration to so many!! Love you mama;) xoxxoxoxoxox
mjd716 (5 лет назад)
I wish you all the best in this journey you are on. Keeping the positive attitude like you are will make a huge difference and I applaud you for that and for your honesty and your bravery!
TheBlushinBrunette (5 лет назад)
Love you, Hayley! You're right- stay positive. We don't have control over certain things. My brother had brain surgery about 13 years ago to remove something that could kill him and it was scary but we prayed a lot and it was a successful surgery. xXOo Carol
Jake Withers (5 лет назад)
youre braver than most people
Jake Withers (5 лет назад)
Whats the deal with the sinus sampling test? Are theyre really risk factors? I was supposed to have that done, still may be, hiopefully soon. Ive had mri's on both the ehad and adrenal area or whatever and they couldnt see nothing but my family doctor said liek you said there could be a small tumpour in the brain that wont show up. does this test for sure see if its there or not? I mean ive never taken steroids or anything, just logically thinking it has to be there. And good luck with everythin
Jake Withers (5 лет назад)
hi again. i just suscribed to your channel.( Im Danny Miller from the otehr cushings video, that was my brothers account) Sorry to hear that its still not cured yet, but i cant believe how positive you are and happy and everything. My doctors have me on suicide watch instead of trying to focus on the things that are making me want to kill myself in the fiurst place, including the cushings symptoms which is a big contributor. I got a question, were kind of in a similar situation...
natureasintended (9 месяцев назад)
I hope you're OK. x
Skye Guy (5 лет назад)
Praying Hayley!!!

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