Mark D. Johnson, MD, PhD, Director of the Adult Hydrocephalus Program at Brigham and Women’s Hospital describes diagnosis and treatment of hydrocephalus.
Hydrocephalus is a disorder resulting from abnormal accumulation of spinal fluid in the chambers of the brain. The most common symptoms associated with hydrocephalus include, headaches, memory problems, walking difficulties and urinary incontinence. It’s been estimated that ten to 15 percent of all patients in nursing homes have normal pressure hydrocephalus, but the vast majority of those patients don’t know it.
The Adult Hydrocephalus Program at Brigham and Women's Hospital is investigating at several different areas of research pertaining to normal pressure hydrocephalus including factors associated with the development of the disease, impact of lifestyle, identification of disease biomarkers, development of new diagnostic tests and enhanced understanding of the underlying mechanisms of hydrocephalus.
Learn more about hydrocephalus treatment and research:
Read the Hydrocephalus Recognition and Treatment video transcript:
I have hydrocephalus, I found out of April of this year. I was born premature tho. I was 1 pound and 12 ounces and my brain was bleeding on both sides. I have a neurologist appointment next week my first one. I'm nervous.
The diagnosis of NPH saved my mom's life and I only have BWH Neurosurgery to thank. Without this diagnosis and shunt she would have been in a nursing home long ago. Today she is nearly 10 years with the shunt. Not perfect but happy, able to walk and at home with me.
I have EDS, as do two of my teenage sons. Some of these symptoms really describe what my 14 yr old and I go through. Who should I talk to? How can I get a doctor to test us? Please, any advice is appreciated. After 12 yrs of severe pain and no doctor being able to figure out why I began to research. After four yrs I find info on EDS and I knew I fond what we had. The following month a geneticist confirmed my theory. Seems like I have to investigate things on my own so any advice would be so greatly appreciated
Hi Celi, thank for your questions. We recommend speaking with a medical professional who specializes in EDS. If you are in the Boston area, our new patient coordinators can help you set up an appointment. You can reach them at 1-855-278-8009, Monday through Friday from 8 am to 5 pm ET or you can request an appointment at https://www.brighamandwomens.org/forms/RequestAppointment.aspx.
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